Hope Begins Early: Lucy’s Story
The early years of a child’s life are foundational for growth, learning, and lifelong development. For infants and toddlers with developmental delays—or those at risk—early support is critical. By equipping families with tools and knowledge, Hope Services helps children unlock their potential and build a stronger future.
According to the California Department of Developmental Services, 77% of children who exit early intervention programs no longer need services after age 3. That’s the power of early support.
Lucy is one of those children receiving early intervention through Hope. She’s a sweet, joyful toddler from Sausalito, California, and turned two this September. When she was six months old, her mother Sarah noticed that Lucy wasn’t hitting typical milestones. She couldn’t sit up—and even more alarmingly—she wasn’t breathing properly. After an MRI and a two-week stay in the NICU, Lucy was diagnosed with Dup15Q, a rare chromosomal disorder.
Dup15Q, is so rare and new that there are currently no known adult cases. Symptoms vary widely, but for Lucy, it means weak muscles and movement challenges. Despite the obstacles, she’s already saying “mama” and “dada”—a milestone her family celebrates deeply.
Lucy’s big brother absolutely adores her. “He can’t go a minute without kissing her or saying how much he loves her,” Sarah shares. But the reality of having a younger sister with visible developmental differences hasn’t been easy. “It’s hard for him when he sees other babies walking and says, ‘My baby doesn’t walk.’ It breaks my heart.”
Sarah and her husband had conceived through IVF and completed genetic testing, but the tests didn’t detect this specific chromosomal variation. When they found Hope Services through Golden Gate Regional Center, they were looking for guidance.
That’s when they met Sabrina, a developmental specialist at Hope Services. Sabrina works closely with Lucy through a blend of physical, speech, and occupational therapy. She also teaches Sarah strategies to support Lucy’s growth at home—transforming everyday play into powerful learning moments.
“Right now, Lucy is in an exploration phase,” Sabrina explains. “She loves toys that make sounds, things she can throw, and pulling objects out of boxes. She’s learning through imitation and building early communication and joint attention skills.”
Some of Lucy’s favorite things? The book Brown Bear, Brown Bear, What Do You See? and the classic tune Twinkle, Twinkle, Little Star. Every smile, every interaction is progress.
“She didn’t sit up until Sabrina started working with her,” Sarah says. “She’s kind, patient, and incredibly knowledgeable. She brings toys, tests Lucy’s endurance, and really understands what she needs. Without Hope, I don’t think we’d be seeing this kind of progress.”
While Lucy’s development is slower due to her condition, the strides she’s making are meaningful. Sarah remains hopeful and driven to learn more. She attended a national conference in Indiana this July to connect with experts and other families living with 15Q.
“She’s such a good baby. She gets excited, sleeps on time—she’s just the best,” Sarah says with a smile.
She also wants other parents to know they’re not alone. “If there’s a mom out there going through something similar, I’d love for them to reach out. Having a community helps so much.” Sarah is part of a Facebook group called Dup15Q Alliance, where she shares experiences and finds support from families across the country.
Lucy’s story is just one example of how early intervention, compassionate care, and dedicated family support can shape a child’s path. At Hope Services, we’re proud to walk alongside families like hers—every milestone, every step of the way.
Support families and children like Lucy.
