General Resources for Developmental Disability (DD) Information and Advocacy

The Arc

The Arc – A Leader in Disability Rights:  We are the largest national community-based organization advocating for and serving people with intellectual and developmental disabilities and their families.  We encompass all ages and all spectrums from autism, Down syndrome, Fragile X and various other developmental disabilities.

AAIDD

American Assoc. on Intellectual and Developmental Disabilities (AAIDD) – AAIDD promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities.

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IT Hare: Guide to Software Accessibility for the Disabled – A variety of information and resources related to assistive technology for people with disabilities.

Autism

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Organization for Autism Research (OAR) – Helpful explanations of the latest autism research in layman’s English.

Autism Advocacy Groups

Autism Speaks

Autism Speaks –  Autism Speaks has a variety of toolkits to download, including a toolkit for parents of young children  recently diagnosed with autism. A wealth of additional information is also available.

Autism Now

Autism NOW – The nation’s source for resources and information on community-based solutions for individuals with autism, other developmental disabilities, and their families.

Aware Collaboration

Aware Collaboration – Working to prevent wandering incidents and deaths within the autism community.

Autism Society

Autism Society – The Autism Society, the nation’s leading grassroots autism organization, exists to improve the lives of all affected by autism. We do this by increasing public awareness about the day-to-day issues faced by people on the spectrum, advocating for appropriate services for individuals across the lifespan, and providing the latest information regarding treatment, education, research and advocacy.

Cerebral Palsy

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Cerebral Palsy International Research Foundation (CPIRF) – CPIRF is the largest U.S. based non-governmental funder of medical, scientific, and clinic research in Cerebral Palsy. Since our founding in 1955, we have spearheaded a wide range of initiatives to reduce the prevalence and impact of Cerebral Palsy.

Cerberal Palsy Advocacy Groups

United Cerebral Palsy

United Cerebral Palsy (UCP) – UCP educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities. UCP works to advance the independence, productivity and full citizenship of people with disabilities through an affiliate network that has helped millions.

CP Family Network

Autism Society – The Autism Society, the nation’s leading grassroots autism organization, exists to improve the lives of all affected by autism. We do this by increasing public awareness about the day-to-day issues faced by people on the spectrum, advocating for appropriate services for individuals across the lifespan, and providing the latest information regarding treatment, education, research and advocacy.

Down Syndrome

Information about Down Syndrome

Down Syndrome Advocacy Groups

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National Down Syndrome Society – The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome.

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National Association for Down Syndrome – The NADS is the oldest organization in the country serving individuals with Down syndrome and their families.

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National Down Syndrome Congress – The purpose of the NDSC is to promote the interests of people with Down syndrome and their families through advocacy, public awareness, and information dissemination on all aspects of Down syndrome.

Fragile X

National Fragile X Foundation

National Fragile X Foundation – Resources and information related to Fragile X-associated Disorders.

Learning Disabilities and ADD/ADHD

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Learning Disabilities Association of America – Includes helpful information on a variety of learning disabilities and ADD/ADHD.

Tourette Syndrome

Information about Tourette Syndrome

Tourette Syndrome  Advocacy Group

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National Tourette Syndrome Association (TSA) – Our mission is to identify the cause of, find the cure for and control the effects of Tourette Syndrome.  We offer resources and referrals to help people and their families cope with the problems that occur with TS.